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About

We are an international coalition of Lyme patient groups and individuals. We intend to bring about grassroots change for patients with Lyme and associated diseases around the world. Our focus is on patients: their rights to access safe health care that delivers the best possible treatment outcomes.

Background

Knowing that the best way to hide, dismiss and/or ignore a pandemic is to keep its key stakeholders ‘siloed,’ patients developed a strategy of international unity.  The resulting coalition was initiated by patient groups in Spain, France, Australia and Canada and has quickly been embraced globally as a vehicle to clearly articulate the patient voice.

Actions

We will connect global patient groups and individuals to:

  • communicate advancements in prevention, diagnostics, treatment, best practice patient care and innovative, patient-focused research
  • develop a library of both strategies and precedents in legal remedies for patients and their doctors
  • align global groups and individuals in coordinated and cooperative awareness events making the patient voice loud and consistent

Leaders don’t create followers,
they create more leaders

Lyme global leadership

Structure

The Lyme Global Coalition for Patient Rights vision is for all citizens to enjoy the world’s best standards in Lyme and associated diseases prevention, diagnostics, treatment, respectful patient care, and research.

The Lyme Global Coalition commits to ethical service without ego – the foundational focus is on the best outcomes for patients globally.  The membership is aligned with a common purpose while maintaining interdependence.  Members must have a lived experience of Lyme and associated infections or have supported someone who has.

Members

Are Lyme group leaders and/or their representatives and individuals who support the vision, mission, goals and activities of Lyme Global Coalition. Members need to:

  • Commit to signing the membership commitment and aligning with the Code of Conduct
  • Commit to supporting the activities of the leadership team where possible
  • Commit to being available to contribute and vote on decisions via Slack (communication app)
  • Professionally support and publicly promote the Lyme Global Coalition actions in their own group’s communication channels

Followers with a passion for justice and making a difference may voluntarily offer skills and resources towards:

    • Operations
    • Website management
    • Facebook page management
    • Legal precedence library
    • Writing/Communications
    • Membership convenor

Supporters

Are Lyme group leaders and/or their representatives and individuals who support the vision, mission, goals and activities of Lyme Global Coalition. Unable to commit time and resources, supporters can:

  • Display a Lyme Global badge on their site and socials
  • Commit to supporting where possible
  • Professionally support and publicly promote the Lyme Global Coalition actions in their own group’s communication channels
  • Refer resources and ideas when and where possible

Advisors or Mentors

Are professionals who support the vision, mission, goals and activities of Lyme Global Coalition. They need to:

    • Commit to staying connected to communications and actively share/promote where possible and relevant
    • Commit to supporting the coalition with professional advice where possible